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Infectious Diseases

and STD-AIDS

Infectious Diseases and STD-AIDS 2018

Journal of Transmitted Diseases and Immunity

ISSN 2471-8084

A p r i l 2 6 - 2 7 , 2 0 1 8

R o m e , I t a l y

Page 28

European African Advocates Network is a new Europe-wide initiative that

aims to enhance the quality of life of black and minority [BME] and specifically

African patients living with HIV, viral hepatitis and other chronic conditions.

EATAN aims to address lack of voice and participation of African patients on key

screening, treatment and care decisions. EATAN works with key stakeholders

to influence policy; best practice and empower patients with information; skills

and resources to self manage and make informed choices about their care.

Legal Status:

A Community Interest Company registered on 16th August 2015.

Mission statement:

European African Treatment Advocates Network [EATAN]

works to reduce inequality in healthcare access experienced by black and

minority ethnic [BME] and specifically African patients living with HIV viral

hepatitis and other chronic conditions in Europe and to enhance their voices

and actively participate in key diagnosis treatment and care decisions and

plans.

Goals & objectives:

Enhancing BME/African patient voices, experiences,

participation and impact on health policies, treatment and care at local,

national and EU level.

Developing a core team expert patients and treatment advocate representative

of the diverse needs, interests, concerns and identities of BME/African patients

across the EU.

Promotinghigh levelsof treatment adherence amongpatients throughprovision

of quality and appropriate treatment information, literacy and support.

Addressing current imbalances in participation of BME/African patients on

clinical trials, scientific and other types of research that results in knowledge

gaps and lack of evidence.

Biography

EATAN was conceived by a group of HIV and HepC patients

EATAN and treatment advocates at Professor Ian VD Weller

Glasgow Global Treatment Congress in 2012 following ex-

tensive consultations with other patients, clinical consultants,

policy and healthcare professionals majority of who were con-

cerned about poor health outcomes, lack of participation, voice

presentation patients of African background in various high

prevalence EU countries on key processes, platforms and bod-

ies that determine policies and practices on HIV, Hepatitis and

other blood borne diseases.

tinahkabukoma@gmail.com

EATAN VOICE OF THE UNHEARD

Kabukoma Christine

Country Representative European African Treatment Advocates Network [EATAN], Italy

Kabukoma Christine, J Transm Dis Immun 2018 Volume 2

DOI: 10.21767/2573-0320-C1-002

Campaigning against negative attitudes, stigma,

faith and cultural norms that isolate vulnerable

patients and prevent effective access to

diagnosis, treatment and care.

Building partnerships and alliances with key

stakeholders for shared learning and best

practice.

Intended Outcomes:

An empowered, informed

and vibrant group of BME/African HIV patients

taking more responsibility for their health and

making informed decisions on treatment and

care.

Keywords:

EATAN Empowering Migrants &

Improving Health options Ending the HIV/AIDS

epidemic is our life contract One life saves a

million lives